Showing posts with label staring. Show all posts
Showing posts with label staring. Show all posts

Wednesday, August 17, 2011

Follow-up: Staring, people's assumptions

Yesterday I posted a blog entry about the issue of staring at people in wheelchairs. Today, I came across another interesting viewpoint, from Tiffany Carlson (@TiffCarlson).

It is from the EasyStand blog, in a post entitled "We Can Live The Good Life Too":

Sometimes I get the feeling that everybody is staring at me. Not because I’m in a wheelchair, and not because my hair is brighter than some car headlights. They stare because they’re surprised – they’re surprised to see a woman in a wheelchair who doesn’t fit the typical “wheelchair person” mold, and they do a double take.

Someone in a wheelchair should be pitiable, helpless, unable to “truly” live fully, but when they see me whiz by, or especially once they get to know me, the people who’ve NEVER known someone with a disability, and if asked – would probably say our lives could never be fulfilling – find an overwhelming blanket of confusion settle in. Crippled yet accomplished…and possibly enviable? Brain does not compute.

This ties into what I mentioned in yesterday's blog entry about hanging out with friends and how both my friends and I are stared at in public as if it's an alien concept for a person in a wheelchair to have friends and hang out with them. I don't know if it's the archaic notion that people in wheelchairs are "supposed to be" shuttered away from the public and other people, but it certainly seems to befuddle a lot of people.

In addition, I am more mobile and agile than people assume. On more than one occasion, I've had people make surprised remarks about how fast I am and how well I can get around. At one recent job interview, the person on the phone was doubtful as to whether I can do the job (it's in retail) but the interviewer quickly saw that I had no problem getting around even in a wheelchair, and said, "Yeah, you move around pretty well. It might not even be a problem in this job at all."

They don't know that I am capable of things like wheeling at full running speed for 3 kilometres along the False Creek seawall without stopping, and then some. They don't know that I've done more things in a wheelchair than my time out of it. They don't know a lot of things that would surprise them because it's assumed that if you can't walk properly, your life... well, kind of sucks.

Those things really give a new spin on the idea of the "typical" wheelchair user. I have a habit of doing things that are not expected of wheelchair users, such as go around independently or hanging out with people I know. After all, this kind of thing is expected from other people, so why not us?

Tiffany ends her piece by saying:

You can’t stop people from jumping to assumptions and throwing their old school stereotypes on you. At the end of the day you just need to live your life without care of what anyone thinks.

It's definitely true. When I was adjusting to life with a disability, I found that people tended to help a lot, sometimes to the point where they are actually being UNhelpful. An example is holding a door open while standing right in front of the doorway, or opening the other double door (which I use for leverage when opening the first double door). I don't need or want the help sometimes but what can you do? The assumption that people in wheelchairs are helpless is something that doesn't disappear overnight; the only thing to do is ignore that and do whatever you would do if those people weren't there.

I may be ranting by now, but I think Tiffany touched on a very big topic that is often overstated but under-analysed. Assumptions permeate our lives more than it should, but they certainly make life interesting.

Tuesday, August 16, 2011

Staring

As someone in a wheelchair, I tend to stand out. It's unavoidable. You're different. Your inability to walk distinguishes you from the general population and it leads to things like pity, prejudice, assumptions and so on.

In Western cultures, we are taught that staring is impolite. This rule enters a weird gray area when it comes to people with visible disabilities. Most commonly, either people will stare at you intensely or avoid looking at you as if looks could literally kill. Both of these extremes can be a little annoying, though it's the staring that bugs me sometimes.

A few days ago, I came across a video interview with Paralympian Chelsea McClammer from neighbouring Washington state, who received an L-level spinal cord injury when she was a small child. She was asked about whether it bothers her when people stare at her. Her answer was quite interesting (and amusing):



Her answer was not at all what I expected. Personally, I hate being the centre of attention in a group (outside of spectator sports, where I often cheer for the enemy team). I get uncomfortable when people give me attention only because I'm in a wheelchair. I'd rather be noticed for something else – ANYTHING else – other than that.

However, my answer is not all black and white. I don't mind it if a child stares, because they are merely curious. But when the child's parents usher him/her away and order the child not to stare, that also bugs me because it re-enforces the idea that people with disabilities are to be feared or ignored.

Yet I don't like grown-ups staring at me. Go figure.

Also, not staring can lead to ignorance. I don't mean "ignorance" as in "lack of knowledge" but rather as in "ignoring someone." I've been in situations where I would enter a store and the clerk would completely ignore me to the point where if I needed help finding or getting something, he/she would be totally oblivious to my presence. That's not good either, so perhaps conditioning people to not stare (or even look) at people with disabilities is a problem.

This question is more loaded than it seems, so I posed a question on Twitter:

I asked this question a few days ago & would love to get some input: As a person with a disability, do you mind others staring? Why/why not?less than a minute ago via web Favorite Retweet Reply



Some of the answers I got were quite interesting:

@NextStopOrBust I hate it, but what can we do? I can't get angry about all of them...less than a minute ago via web Favorite Retweet Reply



@NextStopOrBust Vent-dependent quad here! I've gotten used to it. I just don't know why I'm so fascinating. Ok I can't breathe on my own? SOless than a minute ago via web Favorite Retweet Reply



@NextStopOrBust This is - partly - an answer to your question. @Notorious_QRG writes re: disability and metrosexuality.http://t.co/LYGOcZOless than a minute ago via web Favorite Retweet Reply



@NextStopOrBust And here's a bit by me, about using my wheelchair on the street. http://t.co/mdAFQhAless than a minute ago via web Favorite Retweet Reply



It's a bit fascinating to hear answers going both ways.

I guess the only thing that can please both sides is the often-stated goal of "normalcy" for people with disabilities. Treat them as you would treat any other person, instead of ignoring them or giving too much attention (to the point where it is unwanted) to them.

The friends of mine who knew me before I started using a wheelchair have definitely noticed the staring because they get stared at too, by association. This ties in to the idea of "normalcy" – it should be normal for someone in a wheelchair to be able to hang out with able-bodied friends. Instead, it feels like my friends and I are a bit of a curiosity when we're out.

Hopefully there will be a day when a person with a disability will get stared at for having some food stuck on his/her face instead of his/her method of mobility.